Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.
Identifieur interne : 000035 ( Main/Exploration ); précédent : 000034; suivant : 000036Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.
Auteurs : Elizabeth Rink [États-Unis] ; Kelly Knight [États-Unis] ; Colter Ellis [États-Unis] ; Alma Mccormick [États-Unis] ; Paula Firemoon [États-Unis] ; Suzanne Held [États-Unis] ; Eliza Webber [États-Unis] ; Alexandra Adams [États-Unis]Source :
- Preventing chronic disease [ 1545-1151 ] ; 2020.
Abstract
PURPOSE AND OBJECTIVES
Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices.
INTERVENTION APPROACH
We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs.
EVALUATION METHODS
Discussion questions within existing tribal-academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies.
RESULTS
We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community-researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs.
IMPLICATIONS FOR PUBLIC HEALTH
Tribal-academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs.
DOI: 10.5888/pcd17.200099
PubMed: 33180688
Affiliations:
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Email: elizabeth.rink@montana.edu.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Department of Health and Human Development, Montana State University, 318 Herrick Hall, Bozeman</wicri:cityArea></affiliation></author><author><name sortKey="Knight, Kelly" sort="Knight, Kelly" uniqKey="Knight K" first="Kelly" last="Knight">Kelly Knight</name><affiliation wicri:level="2"><nlm:affiliation>Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Department of Sociology and Anthropology, Montana State University, Bozeman</wicri:cityArea></affiliation></author><author><name sortKey="Ellis, Colter" sort="Ellis, Colter" uniqKey="Ellis C" first="Colter" last="Ellis">Colter Ellis</name><affiliation wicri:level="2"><nlm:affiliation>Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Department of Sociology and Anthropology, Montana State University, Bozeman</wicri:cityArea></affiliation></author><author><name sortKey="Mccormick, Alma" sort="Mccormick, Alma" uniqKey="Mccormick A" first="Alma" last="Mccormick">Alma Mccormick</name><affiliation wicri:level="2"><nlm:affiliation>Messengers for Health, Crow Indian Reservation, Crow Agency, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Messengers for Health, Crow Indian Reservation, Crow Agency</wicri:cityArea></affiliation></author><author><name sortKey="Firemoon, Paula" sort="Firemoon, Paula" uniqKey="Firemoon P" first="Paula" last="Firemoon">Paula Firemoon</name><affiliation wicri:level="2"><nlm:affiliation>Fort Peck Community College, Fort Peck Indian Reservation, Poplar, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Fort Peck Community College, Fort Peck Indian Reservation, Poplar</wicri:cityArea></affiliation></author><author><name sortKey="Held, Suzanne" sort="Held, Suzanne" uniqKey="Held S" first="Suzanne" last="Held">Suzanne Held</name><affiliation wicri:level="2"><nlm:affiliation>Department of Health and Human Development, Montana State University, Bozeman, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Department of Health and Human Development, Montana State University, Bozeman</wicri:cityArea></affiliation></author><author><name sortKey="Webber, Eliza" sort="Webber, Eliza" uniqKey="Webber E" first="Eliza" last="Webber">Eliza Webber</name><affiliation wicri:level="2"><nlm:affiliation>Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Center for American Indian and Rural Health Equity, Montana State University, Bozeman</wicri:cityArea></affiliation></author><author><name sortKey="Adams, Alexandra" sort="Adams, Alexandra" uniqKey="Adams A" first="Alexandra" last="Adams">Alexandra Adams</name><affiliation wicri:level="2"><nlm:affiliation>Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.</nlm:affiliation><country xml:lang="fr">États-Unis</country><placeName><region type="state">Montana</region></placeName><wicri:cityArea>Center for American Indian and Rural Health Equity, Montana State University, Bozeman</wicri:cityArea></affiliation></author></analytic><series><title level="j">Preventing chronic disease</title><idno type="eISSN">1545-1151</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>PURPOSE AND OBJECTIVES</b></p><p>Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices.</p></div><div type="abstract" xml:lang="en"><p><b>INTERVENTION APPROACH</b></p><p>We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs.</p></div><div type="abstract" xml:lang="en"><p><b>EVALUATION METHODS</b></p><p>Discussion questions within existing tribal-academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community-researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs.</p></div><div type="abstract" xml:lang="en"><p><b>IMPLICATIONS FOR PUBLIC HEALTH</b></p><p>Tribal-academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs.</p></div></front></TEI><pubmed><MedlineCitation Status="In-Data-Review" Owner="NLM"><PMID Version="1">33180688</PMID><DateRevised><Year>2020</Year><Month>11</Month><Day>12</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1545-1151</ISSN><JournalIssue CitedMedium="Internet"><Volume>17</Volume><PubDate><Year>2020</Year><Month>Nov</Month><Day>12</Day></PubDate></JournalIssue><Title>Preventing chronic disease</Title><ISOAbbreviation>Prev Chronic Dis</ISOAbbreviation></Journal><ArticleTitle>Using Community-Based Participatory Research to Design, Conduct, and Evaluate Randomized Controlled Trials with American Indian Communities.</ArticleTitle><Pagination><MedlinePgn>E143</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.5888/pcd17.200099</ELocationID><Abstract><AbstractText Label="PURPOSE AND OBJECTIVES" NlmCategory="UNASSIGNED">Academic literature indicates a need for more integration of Indigenous and colonial research systems in the design, implementation, and evaluation of randomized controlled trials (RCTs) with American Indian communities. In this article, we describe ways to implement RCTs with Tribal Nations using community-based participatory research (CBPR) principles and practices.</AbstractText><AbstractText Label="INTERVENTION APPROACH" NlmCategory="UNASSIGNED">We used a multiple case study research design to examine how Tribal Nations and researchers collaborated to develop, implement, and evaluate CBPR RCTs.</AbstractText><AbstractText Label="EVALUATION METHODS" NlmCategory="METHODS">Discussion questions within existing tribal-academic partnerships were developed to identify the epistemologic, methodologic, and analytic strengths and challenges of 3 case studies.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">We identified commonalities that were foundational to the success of CBPR RCTs with Tribal Nations. Long-standing community-researcher relationships were critical to development, implementation, and evaluation of RCTs, although what constituted success in the 3 CBPR RCTs was diverse and dependent on the context of each trial. Respect for the importance of diverse knowledge systems that account for both Indigenous knowledge and colonial science also contributed to the success of the RCTs.</AbstractText><AbstractText Label="IMPLICATIONS FOR PUBLIC HEALTH" NlmCategory="UNASSIGNED">Tribal-academic partnerships using CBPR RCTs must include 1) establishing trusted CBPR partnerships and receiving tribal approval before embarking on RCTs with Tribal Nations; 2) balancing tribal community interests and desires with the colonial scientific rigor of RCTs; and 3) using outcomes that include tribal community concepts of success as well as outcomes found in standard colonial scientific research practices to measure the success of the CBPR RCTs.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Rink</LastName><ForeName>Elizabeth</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Department of Health and Human Development, Montana State University, 318 Herrick Hall, Bozeman, MT 59717. Email: elizabeth.rink@montana.edu.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Knight</LastName><ForeName>Kelly</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ellis</LastName><ForeName>Colter</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Sociology and Anthropology, Montana State University, Bozeman, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>McCormick</LastName><ForeName>Alma</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Messengers for Health, Crow Indian Reservation, Crow Agency, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>FireMoon</LastName><ForeName>Paula</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Fort Peck Community College, Fort Peck Indian Reservation, Poplar, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Held</LastName><ForeName>Suzanne</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Health and Human Development, Montana State University, Bozeman, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Webber</LastName><ForeName>Eliza</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Adams</LastName><ForeName>Alexandra</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Center for American Indian and Rural Health Equity, Montana State University, Bozeman, Montana.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2020</Year><Month>11</Month><Day>12</Day></ArticleDate></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Prev Chronic Dis</MedlineTA><NlmUniqueID>101205018</NlmUniqueID><ISSNLinking>1545-1151</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>11</Month><Day>12</Day><Hour>17</Hour><Minute>11</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>11</Month><Day>13</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2020</Year><Month>11</Month><Day>13</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">33180688</ArticleId><ArticleId IdType="doi">10.5888/pcd17.200099</ArticleId><ArticleId IdType="pii">E143</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>États-Unis</li></country><region><li>Montana</li></region></list><tree><country name="États-Unis"><region name="Montana"><name sortKey="Rink, Elizabeth" sort="Rink, Elizabeth" uniqKey="Rink E" first="Elizabeth" last="Rink">Elizabeth Rink</name></region><name sortKey="Adams, Alexandra" sort="Adams, Alexandra" uniqKey="Adams A" first="Alexandra" last="Adams">Alexandra Adams</name><name sortKey="Ellis, Colter" sort="Ellis, Colter" uniqKey="Ellis C" first="Colter" last="Ellis">Colter Ellis</name><name sortKey="Firemoon, Paula" sort="Firemoon, Paula" uniqKey="Firemoon P" first="Paula" last="Firemoon">Paula Firemoon</name><name sortKey="Held, Suzanne" sort="Held, Suzanne" uniqKey="Held S" first="Suzanne" last="Held">Suzanne Held</name><name sortKey="Knight, Kelly" sort="Knight, Kelly" uniqKey="Knight K" first="Kelly" last="Knight">Kelly Knight</name><name sortKey="Mccormick, Alma" sort="Mccormick, Alma" uniqKey="Mccormick A" first="Alma" last="Mccormick">Alma Mccormick</name><name sortKey="Webber, Eliza" sort="Webber, Eliza" uniqKey="Webber E" first="Eliza" last="Webber">Eliza Webber</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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